Cure CMD

Cure CMD was established in 2008 by a trio of parents whose children were affected by congenital muscular dystrophies (CMD). Since its founding, Cure CMD has built a vast network of impacted families, scientists, doctors, volunteers, and donors who are committed to supporting patients and propelling research into treatments and a cure. At the core of the organization's approach to research and development is a strategy that identifies scientists around the globe who possess a broad array of expertise. Through this strategy, Cure CMD launched two clinical trials and completed a five-year natural history study with the National Institutes of Health within its first decade as an organization. Cure CMD plans to launch clinical trials involving all five subtypes of CMD before 2025.

Further, the organization has fundraised more than $2 million to support research grants and has grown the Congenital Muscle Disease International Registry to more than 2,600 registrants worldwide. Beyond its focus on future approaches to these diseases, Cure CMD also provides critical support services for patients and families currently affected by CMD.